Sustaining Long Term Work with Persons Who Have Degenerative Conditions
I walk into Leah’s room for the second time this week. She is positioned on her side with an oxygen mask askew over her face. She is curled up in the fetal position, knees into her chest. Her eyes are partially open, not really seeing. She is covered with a weighted blanket, an attempt to slow/stop her almost constant jerking movements. In summary, Leah appears to be exactly the same as I left her just two days earlier. For the most part, this is how Leah has looked for the past three years.
I know this wasn’t always Leah’s existence. Continue reading “The End is Near?”